BMT Day 65

BMT Day 65: Ashtyn engrafted over 3 weeks ago. We’ve been in the hospital 72 days with no idea when she’ll be able to leave. She is doing all that is asked of her; eats when her stomach doesn’t want food, exercises when her body is thoroughly exhausted, interacts when every ounce of her soul screams for constant sleep. Her physical body needs to turn a corner for good pronto before she can progress further. The adenovirus needs to disappear so Cidofovir is stopped so her kidneys will stop getting injured so the insanely high IV potassium needs will decrease so she won’t need constant cardiac monitoring and regular lab draws. Her kidneys also need to heal so she can lose 30 pounds of retained fluid so she can walk and breathe better so she can get stronger and more independent. Her stomach needs to heal so she’s not nauseated so she can eat calories so IV nutrition won’t be needed. See the conundrum? Her biggest medical problem currently is adenovirus, Cidofovir, kidney injury, and hoping she doesn’t have gut graft verses host disease. Her physical and morale biggest problem is having so much fluid in her body that she’s 140 pounds when she’s normally 100 pounds. Mostly I’m totally patient but today I’m getting impatient. I shed tears for her today. I pray that God will help her body do it’s part as she is doing hers.