Saturday, June 30, 2018

A Surprise From God

Thursday I got super stressed. I was worried about Ashtyn’s current health and her future. My heart ached because of all she’s been through and all she’s missed out on. I wondered what more could possibly be expected of her. There was nothing more she could sacrifice when everything (in my mind) had already been taken from her. I felt her situation was cruel and very much on the level of Job. I reviewed in my mind possible side effects a cancer patient could experience and figured she had dang near experienced them all. A number of emotions dug into my heart including fear, anxiety, defeat, and submission. One thing I didn’t feel was anger. I wasn’t angry with the situation or with God, I just felt hurt and worried. For some reason I started singing church songs in my head which I have never done before. Words like, “Heavenly Father are you really there? And do you hear and answer every child’s prayer?” And, “I need thee every hour, stay thou nearby.”  And “Where can I turn for peace? Where is my solace?” I’ve never experienced this before but within minutes the pit in my stomach calmed and the weight of worry lifted. I enjoyed watching a movie with Ethan and went to bed near 4:00 a.m. with trust that things would work out. Little did I know what that meant. I was completely surprised and in total awe as Friday unfolded before my very eyes. Ashtyn’s health had dramatically improved to where it was clear she was ready to leave the hospital. From 8:30 a.m. until 6:00 p.m. more hospital staff than I can list worked together to get everything in order for us to go home for three days. Procedures were moved around, orders were quickly written, her oncologist Adam was contacted who then contacted her Salt Lake City oncologist Luke to coordinate care while home. Nurse Becky from SL called me to schedule Ashtyn’s daily anti-fungal infusion that will take place at Primary Children Hospital. While behind the scenes logistics were being taken care of by doctors, Ashtyn had a procedure in the OR, a medication infusion, blood transfusions, and central line dressing change. Everyone worked together to do what they could to get us home and thought nothing about what a hassle it was on them. We left the hospital as soon as her blood transfusions were complete at 6:15 p.m. and easily made our 8:45 p.m. flight. I’m grateful for individuals who literally change my life with small acts of kindness. (Small and simple things really do bring about great things.) I’m also grateful to God. There are times I wonder where He is and why He’s not helping me more. I try to keep my walls down with Him because sure enough He always comes around and makes His love known. We are grateful to be home. We are grateful to have seen God’s love. Sunday we are fasting and praying for Ashtyn to have cancer free results next week. We would love if you would join us. Her entire journey has been a group effort and we’re grateful for every single prayer and fast. We definitely have been blessed and strengthened.


Friday, June 29, 2018

A Lot Can Change In One Day

Thursday the general vibe was defeat. Ashtyn cried several times throughout the day feeling disappointment. She was sad her body wouldn’t allow her to be awake longer than 5 minutes. Anytime she was awakened to do a task, a few minutes later she’d fall back asleep. At 3:00 p.m. she was wheelchaired to the hospital gym for occupational therapy and fell asleep while doing arm exercises. At midnight Ethan and I watched The Martian. She was too sedated to join us. Ethan was going home the next day and Ashtyn was disappointed to have missed so much time with him. Friday morning her exhaustion lifted. Ethan saw it in her eyes immediately and said, “Hi Ashtyn!” as if he hadn’t seen her in days. The Friday afternoon bronchoscope to check for a possible fungal lung infection was moved to 10:30 a.m. The bone marrow aspirate that was scheduled for today was bumped until Monday because of the bronchoscope. The oncology team wanted to give Ashtyn the chance to go to Salt Lake City so they moved the bone marrow aspirate to Tuesday afternoon giving her three days at home. With all of the moving parts of the last two weeks, I’m shocked that we are able to fly home tonight. After going under anesthesia for a lung procedure, getting two units of blood, and a two hour fungal medication infusion, we’ll leave the hospital, go straight to the airport, and sleep in our own beds tonight.






Thursday, June 28, 2018

Progress And Side Effects

It’s been three days since Ashtyn was admitted into the hospital with severe and debilitating neuropathic pain. The drug Pregabalin was started, which helps with nerve pain, but takes time to become effective so in the meantime Ketamine, Dilaudid, and Ativan have been used. The benefit of all these medications is that they lessen the intensity of pain. The downfall is Ketamine has caused some hallucinations, drowsiness, and tearful emotions while Dilaudid and Ativan makes her super sleepy. Pregabalin also has caused a few side effects including fatigue, jerking and twitching muscles, difficulty paying attention, and forgetfulness. Comparing her to a few days ago, she was in a lot of pain, alert, sleepless, and unable to walk. Yesterday she was in less pain, slept most of the time, had unclear thoughts and speech, and continued needing complete assistance to walk. It’s difficult for me to gauge improvements when she went from not being herself because of pain to not being herself because of sedation. Ethan has been at her bedside for 3 days straight. I know she wishes she had it in her to watch movies and hang out with him but at this point she hardly notices he’s there. With pain decreasing, the goal is for her to become more mobile, less sedated, and off the IV continuous Ketamine. She and I were suppose to fly to Salt Lake City with Ethan on Friday. I wish it were in the cards for her to go home but I don’t know if it is. Please pray that if one door closes, a better and brighter door will immediately open and that peace will continue to be felt.








Tuesday, June 26, 2018

Unpredictability And Cancer Go Hand In Hand

Yesterday did not end up how I thought it would, but unpredictability is a partner to cancer. Throughout Sunday and Sunday night, nerve pain was impossible to manage. At Ronald McDonald House, she took the strong narcotic Dilaudid as well as a 1:1 tincture of CBD and THC, both recommended by her doctors and both provided little relief. I also gave her Tylenol and Benadryl hoping something would help. Nothing. We kept thinking the pain would improve when really it just got worse and worse and eventually took away her ability to walk and function. At 8:00 a.m. on Monday I called the oncology clinic to let them know she needed to be admitted. We took the suitcases that were packed the night before and headed to the hospital. In an attempt to lessen pain immediately, a couple doses of IV Dilaudid were given which had zero effect on bringing comfort. By noon she was in a hospital room and by 1:30 p.m. the pain team had a plan. Gabapentin was stopped and another nerve pain medication called Pregabalin was added. She was hooked up to monitors and a continual low dose infusion of Katamine was started, which is an analgesia drug that’s known to help neuropathic pain. While those drugs continue to take effect, oral Dilaudid is used with the occasional IV Dilaudid when needed. After 16 hours in the hospital, pain gradually came down from a 8/9 to anywhere between 5-7. Her legs continue to be weak and painful requiring help to walk but we are relieved to see some progress. I’m impressed with how Ashtyn has handled it all. Though I personally have felt some frustration and sadness, she has never gotten down on God, complained, or wanted a pity party. She quietly endures with remarkable grace, patience, and strength. I’m really proud of her. My friends flew back to Salt Lake City. I will forever be grateful to them. Ethan is staying in Seattle with us and is our sunshine. Please pray she remains healthy in the hospital.









Monday, June 25, 2018

Nerve Pain

My two girlfriends, Kathy and Holly, and son Ethan have been in Seattle visiting for the past six days. During that time Ashtyn has been struggling with nerve pain. Everyday the location and level of pain has been unpredictable. The effectiveness of pain medications has been sporadic as well. Sometimes medications help, other times they don’t. We have been taking each day as they come and were fortunate to be able to go on one outing everyday except yesterday. Yesterday’s pain was constant and most severe. She could not walk to the restroom without assistance and sleeping was impossible. Two men from the local LDS church came to the Ronald McDonald House at noon and gave her a priesthood blessing. Afterwards she slept well for a couple hours and then woke up with pain again. I didn’t leave her bedside all day so I could help her walk when needed and give different medications in hopes that something would work. Holly and Kathy never left either except to make us dinner. They provided the most calming support. By 11:00 p.m. pain was excruciating and something needed to change. Tears filled my eyes as I felt such sadness seeing her in pain and such frustration not seeing prayers answered. Right then and there I said a prayer out loud. We really do trust God. I told Him that I would start getting ready to take Ashtyn to the hospital. I asked if He would make sure her pain remained high if it was best to take her in. If it was better for her to stay at the Ronald McDonald House then I wanted her pain to ease a bit. After ending the prayer I began preparing to be inpatient. I gave her all the night medications, called the hospital on-call resident who gave the ER a heads up that Ashtyn was coming, two suitcases were packed, and I took a shower for the long day ahead. I was ready to leave for the hospital at 1:00 a.m. and found her sleeping. She slept for a couple hours before waking up and decided to continue trying to manage the pain outside of the hospital. Please pray that 1. her nerve pain will decrease 2. her steroid weight gain will decrease. 3. she will be cancer free by the end of the week.


Saturday, June 23, 2018

End Of A Chemo Round

Yesterday was clinic day and Ashtyn’s last day of chemo for this round. My friends from home, Holly and Kathy, are in Seattle visiting and decided to come to the hospital with us. Ashtyn woke up, after a restless night of sleep, with so much nerve pain in her legs that it was obvious she was unsafe to walk. We wheel-chaired her to the car and then wheeled her to clinic. After getting blood labs drawn we talked with her oncologist Adam Lamble for over an hour. I’m sure the conversation could have been condensed and rushed, but Adam’s heart is too big to do that. We discussed pain. The decision was made to hold her last dose of the chemo drug Vincristine with the thought that the risks of the drug outweighed the benefits. We talked about the plan in one week. A bone marrow aspirate and biopsy will be done on June 29th to find out if she has 0.0% leukemia cells which would allow her to receive a bone marrow transplant on July 27th. We also talked about blood lab results and general health. Other than pain and the weight gain caused by steroids, she really is doing well. After four hours at the hospital we decided to take it easy the remainder of the day. Ashtyn was miserable and still had minimal ability to walk. We got her settled in bed at the Ronald McDonald House. Surprisingly five hours after taking a pain medication, she began feeling more comfort and relief than she had in several days. Medically it doesn’t make sense why she felt significantly less pain several hours after taking medications but when it comes to Ashtyn, I do not question the unusual. Throughout the evening she enjoyed pain relief while we all enjoyed each other’s company. On July 1st we are going to have a special fast and petition to God for Ashtyn to be in a deep remission with 0.0% leukemia results on July 2nd. Will you start helping us spread the word? We would love if as many people as possible would join us.



Wednesday, June 20, 2018

Company Helps Pass The Time

Ashtyn has 1 1/2 weeks left of this chemotherapy round and everything is going really well. On a scale of 1-10, 10 being the worst pain imaginable, her nerve pain tends to hover near a 4. About twice a day she takes an effective pain medication when shooting neuropathy brings the number to a 6. Other than that, symptoms from chemotherapy have been minimal and she has remained healthy. After being back in Seattle for four days, we both started to feel really bored. Boredom is something we rarely feel during cancer treatment. We got what we prayed for and it’s been appreciated.  Too much boredom isn’t a good thing though and we were very blessed to replace the boredom with fun when four visitors flew into Seattle yesterday. My son Ethan flew from Salt Lake City with my two girlfriends Kathy and Holly, and Ashtyn’s friend Shelli flew in from Alaska. Months ago I planned a Lake Powell girlfriend vacation for this week. Once the trip was canceled, Kathy and Holly decided to use their planned time off to hang out with us in Seattle. We couldn’t be happier about the timing. Shelli is a cancer warrior we met two months ago while inpatient at Seattle Children’s Hospital. She has since moved back to Alaska and is a forever friend who wanted to come visit. After hanging out all day, eating dinner in the park, and watching the classic chick flick “Sleepless in Seattle”, Ashtyn still had energy to chit chat all night long. Shelli had a procedure in the morning and Kathy was tired ha ha! so we called it a night at 2:00 a.m. Seattle life is good right now and I’m grateful we have company to share it with.







Sunday, June 17, 2018

Happy Sabbath

If anyone were to ask me why I think or feel the way I do, it would always go back to the spiritual nature of my life. My personal spiritual stance happens to be super super simple. I simply know that God and Jesus Christ lives. I’m not amazing that I know God lives. God is amazing because He proves Himself daily by giving me blessings that compensate for my struggles. I’m not amazing that I know Jesus Christ lives. Christ is amazing because He proves Himself over and over by easing the pains in my heart and lightens the burdens on my shoulders. It’s not just me and not just Ashtyn who have experienced this. Many others, no matter what religion or lack there-of, have noticed that during difficult days at least one thing made us smile, one thing went our way, or a tender mercy came that wasn’t expected. Those are gifts from God. There are many others who experience situations in life that push us to a breaking point where we don’t think we can handle one more moment only to have added strength we didn’t know we had and peace we didn’t expect to feel. That’s Jesus Christ. How can we come to know God lives unless we struggle enough to need His blessings, tender mercies, and miracles? How can we come to know Jesus Christ, that He suffered for us so He can lighten our struggles unless we have burdens for Him to bare? I couldn’t possibly tell you all the times I witnessed God’s blessings and felt Christ’s peace during the five years of fighting cancer let alone all the other struggles I’ve had in life. I’m grateful for the heart wrenching experiences and difficult times during my 43 years on earth. It has been in those moments that I have come to know that God and Jesus Christ lives. I’m also grateful for the many joyful times that have been given to me. I will forever praise Them for knowing me and loving me enough to give me struggles and joys that allow me opportunities to come to know Them.






Saturday, June 16, 2018

Salt Of The Earth

Ashtyn is currently half way through her chemotherapy round. (Two weeks down, two weeks to go.) When she went to clinic yesterday morning, labs showed she was extremely immunocompromised because chemo kills good white blood cells. (I’m grateful she remained healthy at home and didn’t get sick from being on an airplane.) Arriving at clinic she was also on the verge of tears because of nerve pain, a side effect from the chemo drug Vincristine. (While home the neuropathy got worse and worse with each day. By the time we flew back to Seattle the burning, pins and needles, and numbness was at a level where I had to wheelchair her to the gate and request wheelchair assistance when we landed in Seattle. Before boarding the plane she texted her doctor in Salt Lake City, Luke Maese, and ask for suggestions on how to manage the pain so she could continue taking Vincristine, giving her the best shot at getting cancer free this month.) Adam Lamble, her oncologist in Seattle, was relieved she was back in town safe. He came into her clinic room with nurse practitioner Jen, palliative care and pain expert Dr. Beck, and a palliative care nurse. Dr. Lamble had received an email from Dr. Maese addressing the pain issue Ashtyn experienced in Salt Lake City.  Everyone in the room was there to find a solution to decrease pain. After an hour discussion, a plan was in place. I was in awe and so touched by how much love and attention Ashtyn gets. How did I get so lucky to witness and be associated with such salt of the earth people? The oral narcotic Dilaudid was prescribed and was soon effective at bringing the pain level down to a comfortable level. If there ever comes a time when Dilaudid alone doesn’t do the trick, we have more options to add. The fact that chemotherapy was given as scheduled, an awesome pain management plan was in place, and I got to chat with such super cool people made for a really great day. In the evening Ash started redecorating and cleaning our room and said, “It’s a lot easier to be happy when I’m not in pain.” Life is pleasant. Please pray for continual health during the remainder of the month with cancer free results in July.




Friday, June 15, 2018

Back In The Saddle Again

We’re back in Seattle again. Every time I say that I hear the song “Back in the saddle again”. Ha ha! I actually do feel we are back in the saddle again. Ashtyn and I feel emotionally and spiritually renewed. We feel more courage, purpose, and trust in our Heavenly Father’s plan. I can’t put a finger on exactly why this added strength is being felt but I’m extremely grateful for it. We were home five days and had some great experiences. There weren’t any big parties or gatherings but rather our time was spent more simply. The week included going to Ethan’s basketball game, being able to talk to our bishop and received priesthood blessings, Sunday extended family dinner, dropped Ethan off at Camp Hobe; an event we were so glad to not miss out on. We had an evening at the pool with my parents, siblings, friend Brittany, Jason, Natalie, and Brad. I went to Primary Children’s Hospital to see my friend Heather and her son Clint who got a BMT in September. Ashtyn took an English Literature test and passed off one of her packets. I got Morgan set up with her first debit card. Our time home seemed like a typical summer week doing what we would have if Ashtyn were receiving chemotherapy in Salt Lake City. I’m grateful for the chance we had to be home and for all the people I was able to chit chat with. Originally I didn’t want to go home and had no expectations. By the end of the week we both felt grounded and strengthened after the highly emotional and volatile past four months. Once settled back in Seattle my friend Holly asked, “How are Ashtyn’s spirits?” The only way I could describe it was, “On point.” One week ago I asked if you would pray for Ashtyn to stay infection free while home, that her nerve pain would stay under control, and that I would smile with relief when she returned to Seattle healthy. She’s healthy, nerve pain is bearable, and we’re relieved and smiling.













Thursday, June 14, 2018

We Are All In This Together

The delightful Millie Flamm was the first child with cancer who gave Ashtyn hope. At the end of January 2013, Millie was in the hospital trying to get cancer free at the same time Ashtyn was in the hospital completely shocked and terrified to hear she too had cancer. Back in those days immunocompromised patients were strictly isolated to their hospital rooms. From down the hall, Millie relayed a message to Ashtyn through her dad Brady. "Dad, I really wish she didn't get cancer.  Please tell her that even though it's really bad, a lot of good things happen, so she shouldn't be too sad." Brady's message to me was, "Be prepared to be amazed by your daughter's strength, your own strength, and by how many people love you." Those words have proven true time and time again. Millie passed away 4 1/2 months later on June 18th 2013 while Ashtyn was in the middle of her first bone marrow transplant. Since then we have continued to be inspired by how Millie always looked on the bright side of things. She took little thought for herself and instead focused her attention on brightening the lives of everyone else around her. Each year in June, Millie’s Princess Foundation hosts a fundraiser run where 100% of the money raised helps one Princess and one Prince who are currently fighting cancer. This year they are raising money for Millie Visser, a bundle of joy who is fighting cancer that causes tumors in her lower spine. She is such a tough, funny, confident, and happy child. Ashtyn and Millie met over a year ago when they both were inpatient and the connection has been there ever since. She is truly a miracle baby who is destined to astound the world while putting a smile on every face she meets. If you can, stop by at this event. It’s a chance to not only raise money for two cancer fighting kids but also to support and cheer on a community of warrior children.












Wednesday, June 13, 2018

Families Are Forever

First picture: That beautiful girl on the right lost her mom on May 28th from a long battle with breast cancer. Sydney has been a close friend of Ashtyn's since elementary school and her mom Laura has been a source of love and support for as long as Ash has known her. We were home in Salt Lake City the week Laura died and are inspired by Sydney's faith, realness, optimism, and perspective. She knows with her mom gone, there will be a hole that will never fill and a heartbreak that will never heal. This remarkable girl also knows that life will still be wonderful and that joyful times are still ahead. She has faith that her mom will continue to stand nearby supporting her though whatever life brings. We love Sydney and are so grateful for her example of faith and love. No doubt her mom is extremely proud of her. 



Second picture: That funny, huge hearted 15 year old boy on the left died June 12th from a long fight with medullablastoma, a form of brain cancer. My kids met and became friends with Kaleb and his siblings a few years ago at Camp Hobe, a summer camp for cancer patients and siblings. They too were in Seattle for cancer treatment. We were at the Ronald McDonald House together when they found out treatment was no longer working so they moved back home to Utah. If I had a picture of his mom and dad, you would see parents with the deepest love in their soul and dedication in their heart for their children, eyes full of determination and courage, and sincere smiles focusing on the good. Ashtyn and I are inspired by the family's bond to one another, their perspective of what matters most, and their ability to smile, joke, and laugh through some really hard times. We love Kaleb, his dad and mom Brian and Tamra, and his remarkable siblings Alec, Jaron, and McKenna. 



Please pray by name for our dear friends, that they will feel loved and their hearts will be strengthen with a portion of comfort and peace during this time.


Tuesday, June 12, 2018

A New Chapter Is Starting

Ashtyn and I have been home for three days with two more days to go before heading back to Seattle. It is known that I didn’t want to come home this week. Being in the middle of a chemotherapy round with a girl who tends to get hospitalized, I wanted to play it safe and stay in Seattle, however I have to allow Ashtyn to take the lead in her life. So far things are going well. I personally have felt uneasy at times. Being on a clinical study, the last thing we want is for her to get hospitalized in Salt Lake City and not be able to get chemotherapy in Seattle on Friday. Neuropathy is ever present with some moments that are much more painful than others. I’m getting more and more confident that the nerve pain will stay manageable with the medications we have. I’ve also been watching her temperature, which is something she had a problem with last chemo round. On Sunday her temperature seemed to be trending upwards which really freaked me out. I have gained some comfort realizing her temperature normally fluctuates but I've never taken her temperature often enough to notice. I am becoming more at ease but won’t feel completely calm until she is back in Seattle. Even though she hasn’t felt as physically well as she would like, Ashtyn has really appreciated her time at home. This particular visit home has really renewed both our spirits. It’s as if the emotional and physical challenges of the past three months are behind us and a new chapter is starting. A couple weeks ago I felt deflated, defeated, and frustrated with God. Those feelings are gone. I’m now really excited to see what He has in store. As God does His part and we do ours, I still believe we are going to be amazed. A couple weeks ago Ashtyn felt she was missing out on experiences and that her time was being wasted. She’s now confident there is tremendous purpose in what she is doing and there’s much to get done. I’m really grateful Ashtyn pushed to go home. Please pray she will remain healthy and safe to receive chemotherapy in Seattle on Friday.


Sunday, June 10, 2018

Not Much To Complain About

I don't have any Last Day Of School pictures this year. I do have this picture of Morgan's grades after finishing up her freshman year of high school. I have no idea how she got such good grades. I give our 2017-2018 school year the award for being the Most Unconventional Year Ever! The school year started with Ashtyn still recovering from her second bone marrow transplant which she received six months prior. She got a concussion at school, thought cancer was back, and had tests in October that showed no leukemia. I had been feeling a push and urgency to spend time together traveling so my kids missed a lot of school to go on several family vacations. Chandler received his mission call to Florida and found out one week before leaving that Ashtyn's cancer was back. He left on his mission, 1 1/2 weeks later Ashtyn and I left to Seattle, and Morgan and Ethan stayed home where they flew up several times to visit us. Ashtyn had the LLS campaign, student body officer elections, and is now catching up on high school credits while kicking cancers butt. Morgan did well in school, loved seminary, is involved in cheer, and got her first summer job. Ethan continues to play hockey and is a kid who loves playing with friends and conquering Fortnite. Chandler emails me stuff like, "I love you and I am so grateful for you as a mother. You have gotten me to where I am today and I am so grateful for that." I probably don't complain much because I simply don't have much to complain about. I happen to love my unconventional life and have a lot to be grateful for.



Saturday, June 9, 2018

Take Therefore No Thought For The Morrow

I don't know what to say about my life. It's crazy! It's been crazy for awhile now. I'm totally learning how to let go of fear and live with trust. Ashtyn is on Day 9 of her 28 day chemotherapy round. At this point she has to go to Seattle Children's Hospital every Friday for a doctors check up and chemotherapy. Other than that, she can stay at the Ronald McDonald House as long as she remains healthy and well. Two months ago she did the same chemotherapy regimen. By Day 11 she was in the hospital with severe nerve pain. By Day 14 she was in the intensive care unit with possible blood culture negative sepsis and continued having complications until Day 34 when she finally was able to leave the hospital. A few days ago she started feeling nerve pain. She was started on a medication called Gabapentin a few weeks ago to be on top of nerve pain in case it came back. We are hoping, because of that, neuropathy doesn't escalate. Another thing that's uncomfortable for her is the 20 pound weight gain steroids caused. Though the weight will eventually come off, it's miserable for her. Other than that, things are going well so far. She got chemotherapy yesterday, stopped steroids for one week, and has nothing on her hospital plate until another dose of chemotherapy this Friday. Naturally she asked if she could go home. I have to vouch for the healthcare team. Her oncologists in Seattle would prefer if she lived in a bubble. I feel the same, but of course that's not realistic. Ashtyn has to live life. We want her to have the best possible quality of life while going through this cancer fight. She also should be able to make her own decisions whenever possible. Putting aside nervous feelings about a bunch of "what-ifs", the decision was made to allow her to fly back to Salt Lake City for five days. Ashtyn knows how unpredictable cancer life is. She lives in the moment and jumps at any opportunity to go home because who knows when the next chance will be. Please pray that 1. she will stay infection and illness free while home. 2. nerve pain will stay under control. 3. her doctor and I will smile with relief when she returns to Seattle healthy for her Friday chemotherapy.




Wednesday, June 6, 2018

Boring Is Good

Ashtyn is on day 6 out of 22 of this current chemotherapy round. She is still participating in a clinical trial, drinking the study drug Venetoclax everyday in addition to receiving the same three chemotherapy drugs given in April. She is doing well and currently outpatient at the Ronald McDonald House. Each day she swallows 32 pills and I give her a one hour infusion medication through her central line, most of which are suppose to help prevent possible chemo side effects. In all the years of fighting cancer, I always hope for a boring chemotherapy round. So far her body is tolerating the chemotherapy well and things are boring. That gives us a lot to be grateful for. It also gives us a lot of time to feel isolated and lonely. Today I read many of the cards Ashtyn has received while being in Seattle. I regret not writing down the packages and cards she has been given so I can write thank you notes. We are extremely grateful for the generous gifts and loving cards. If you have sent something, please know it did not go unnoticed and our gratitude is sincere. We are thankful everyday to know each of you are standing on the side lines cheering us on. It makes us not feel so alone. Though we don't know where the finish line is, Ashtyn is fighting hard and determined to get there.  Please pray she will remain healthy, boring, and be cancer free by the end of June.



Anniversary

It was 6 years ago today Ashtyn was admitted into the hospital and told she had acute undifferentiated leukemia, the rarest form of leukemi...