Friday, August 17, 2018

VIDEO

Bone marrow transplants are hard and hard work. I posted a 4 min 50 sec video to give you a small glimpse. Please pray 1. that her pain will be managed. 2. that her body will gain strength. 3. she will recover from medication toxicity (particularly tacrolimus) 4. potassium levels will stabilize. 5. kidneys will continue to improve. A couple stories: While Ash was in and out of sleep in our quiet hospital room, a housekeeper mopped the floor. I was sitting on the couch and heard the sweetest, “Thank you” from Ashtyn as she received a “You’re welcome” in return. Before going to bed last night Ashtyn seemed to be amazed. “I can’t believe I am able to do this.” My response, “That’s what we’ve been saying. We’re all amazed at what you can do. You are seriously a Rock Star.”








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Anniversary

It was 6 years ago today Ashtyn was admitted into the hospital and told she had acute undifferentiated leukemia, the rarest form of leukemi...